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300-135 400-051 101 adm-201 1z0-808 CCA-500 1v0-621 mb2-707 70-980 70-483 2v0-621 nse4 1z0-434 9l0-012 101-400 300-085 og0-093 1z0-061 70-488 1z0-062 mb5-705 102-400 PEGACPBA71V1 70-463 mb2-704 PR000041 IIA-CIA-PART1 700-037 PEGACSA71V1 1z0-144 2v0-621d 1z0-051 070-461 a00-211 jn0-102 1z0-804 640-875 API-580 3002 400-151 98-365 712-50 9l0-066 ns0-506 156-215.77 70-466 lx0-104 9a0-385 642-980 og0-091 74-678 700-260 70-494 c_tfin52_66 lx0-103 m70-101 pmi-001 DEV-401 1z0-067 1K0-001 220-801 TB0-123 700-038 IIA-CIA-PART2 cwna-106 070-487 hp0-y50 070-483 mb2-708 C2010-595 1z0-883 c_tadm51_731 pk0-003 700-039 jn0-633 98-364 300-080 74-343 1z0-133 70-465 c_tscm62_66 PRINCE2-PRACTITIONER mb6-704 1v0-605 API-571 500-007 and-401 c_taw12_731 AX0-100 070-463 70-981 1z0-052 070-488 c_hanatec_10 010-111 mb6-700 700-270 600-455 600-460 1z0-533

Have a read through some first-hand accounts of what it’s like to have an AVM.


Bhavesh’s  Story

25/02/2013

I suffered a hemorrhagic stroke March 2012, as I was standing in the shower I was hit full force in the brain, as I stood there. I felt my life drift away to almost zero, and another bang in the brain occurred, like I was dragged back into the real word, i believe this occurred over a period of 15mins.  From that point onwards I went into auto pilot.. got the kids ready and went to work, came home and went to sleep at 6pm, and the next day was pretty much the same, apart from when I got home in the evening I did not sleep till 5am in the morning… something was seriously wrong, I had difficulty in understanding what was being said or the general world around me!! 

the next morning my wife took me to see my GP, whom I spent 20mins with, he noticed my answers were slurred and I was all over the place, so he asked for my wife to come into the room, he then went on to explain that something was direly wrong with me, the fact that I showed up in my shorts and my big long winter coat spoke for itself.  He called for an ambulance to take me to Northwick Park Hospital.


I spent the whole day at the hospital, at some point during the day I couldn’t remember my name, age / who I was. They preformed x-ray’s and MRI scans on me throughout the day to diagnose what has been happening to me, I was passed from the morning ER doctor to the afternoon doctor, who eventually told my wife that I had bleed in the brain, and would have to be transferred  to the National Hospital of Neurology and Neurosurgery, which occurred the  following morning at 1AM


I spent the next 14 days of life in the National Hospital as I do now with partial brain engagement… I had further MRI scans; followed up with Angiogram’s which determined that I had an AVM (arteriovenous malformations) in the brain, which had ruptured and caused an intracerebral haemorrhage.  The decision was made amongst the team of doctors to operate on my brain to remove the AVM, which occurred a week later.  When I need the NHS they saved my life and for that I am so grateful!!


After i returned home, although my wife and my children have been good to me the man I was have undergone some changes in the brain, I sufferer from lapses in memory, attention span, balance, co-ordination, focus, heightened emotions and depression.  All though my whole family are supporting me they do not understand the changes I’ve gone through and continue to go through!!


As I am a father of three children I am looking for some kind of return to normal as I am hoping to continue to be a good father and provider for them rather than loose myself due to my stroke!!  Nearly one year later I may have ups and downs, but I have chosen to adopt a more positive view of life…. Making sure I saviour every bit of my experiences for good or for ill.  I have also wanted to see as much of the world as possible and will try and combine this with raising money for charity aiming to give back to those who saved me.


Best Regards,

Bhavesh Patel



I have an AVM! – Nikki’s Story

There  is a light at the end of the tunnel! Together we can make it brighter.

Nikki Christou, raised well over £30,000 in 5 months  with the help of her friends for The Butterfly AVM Charity for vital research into AVMs, and she says this is just the beginning!!

If you would like to share your experience of living with an AVM, whether it’s yourself or a close friend or family member, we would love to hear from you. Email us at – george@butterflyavmcharity.org.uk

Despite the uncertainty of living with an AVM many have managed to be positive and keep going. We want to celebrate with them and their inspirational lives by telling  stories of their achievements.



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