The Butterfly AVM Charity would like to thank everybody who has participated in fund raising activities in the past and for those who are taking part in events now. Your amazing support has allowed us to become a major voice in the fight for increased AVM support, raising AVM awareness to an all time high and being to fund potentially life changing research by Dr Kinsler and her fantastic team
Today is a special day and justification for all the work put in by our helpers and champion fundraisers.
We are pleased to let you know that the research paper,
“Mosaic RAS/MAPK variants cause sporadic vascular malformations which respond to targeted therapy,” has been published.
This is the 1st step but a major one.. If you want to be part of our journey, have an AVM or have a loved one who suffers from an AVM and wanted to help raise funds, that would be fantastic. Or just someone who is thinking of which Charity to raise funds for look no further!
View the article here: Please feel free to share this with your Doctor Surgeon friends uncle aunty etc!
Together we HAVE made a change
George x
See Full Article on link below:
SOURCE: https://jci.org/articles/view/98589