The Butterfly AVM Charity would like to thank everybody who has participated in fund raising activities in the past and for those who are taking part in events now. Your amazing support has allowed us to become a major voice in the fight for increased AVM support, raising AVM awareness to an all time high and being to fund potentially life changing research by Dr Kinsler and her fantastic team
Today is a special day and justification for all the work put in by our helpers and champion fundraisers.
We are pleased to let you know that the research paper,
“Mosaic RAS/MAPK variants cause sporadic vascular malformations which respond to targeted therapy,” has been published.
This is the 1st step but a major one.. If you want to be part of our journey, have an AVM or have a loved one who suffers from an AVM and wanted to help raise funds, that would be fantastic. Or just someone who is thinking of which Charity to raise funds for look no further!
View the article here: Please feel free to share this with your Doctor Surgeon friends uncle aunty etc!
Together we HAVE made a change
George x
See Full Article on link below:
SOURCE: https://jci.org/articles/view/98589
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The Butterfly AVM Charity
5 months ago
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The Butterfly AVM Charity
5 months ago
✨🦋 We’re happy to announce that tickets for The Butterfly AVM Charity Ball on the 11th November, 2023 are now ON SALE!!! 🦋✨
Doors open: 5:30pm
Dinner served: 6:30pm
What to expect:
- drinks reception 🍸
- three course meal 🥘
- silent auction 🙇🏽♀️
- raffle 🎁
- music 🎤
- dancing & entertainment 🕺🏽
Tickets: £70
Address: The Meridian Grand, Advent Way, London, N18 3AF
We can’t wait to see you there!
🎟️⏳ TICKETS: uk.givergy.com/ButterflyAVMCharityBall/?controller=tickets ... See MoreSee Less
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By chance does anyone needs ticket? I ended up with extra than I needed,you know system online messed up, if you need them kindly like my comment and send me a direct message thanks, please I'd hate for them to go to waste.
The Butterfly AVM Charity
5 months ago
A quick message from our very own Nikki Lilly 💜
Tickets to The Butterfly AVM Charity Ball 2023 are out NOW and can be purchased via the link below! 🦋
uk.givergy.com/ButterflyAVMCharityBall/?controller=home ... See MoreSee Less
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Loving the hair !!
The Butterfly AVM Charity
5 months ago
✨🦋 We’re happy to announce that tickets for The Butterfly AVM Charity Ball on the 11th November, 2023 are now ON SALE!!! 🦋✨
Doors open: 5:30pm
Dinner served: 6:30pm
What to expect:
⁃ drinks reception 🍸
⁃ three course meal 🥘
⁃ silent auction 🙇🏽♀️
⁃ raffle 🎁
⁃ music 🎤
⁃ dancing & entertainment 🕺🏽
Tickets: £70
Address: The Meridian Grand, Advent Way, London, N18 3AF
We can’t wait to see you there!
You can find the link to buy tickets below and in the event bio 🎟️⏳
uk.givergy.com/ButterflyAVMCharityBall/?controller=home ... See MoreSee Less
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Just got my tickets for our first ever one! Looking forward to it!
The Butterfly AVM Charity
5 months ago
✨ 🦋 The Butterfly AVM Charity Ball will be back bigger and better than ever on Saturday 11th November 2023! ✨🦋 Tickets on Sale Friday 7th July! Set a Reminder!
✨ 5.30pm - 2.00am, Dinner - 6.30pm ✨
✨ £70.00 ✨
✨ The Meridian Grand, Advent Way, London, N18 3AF ✨
🦋 Cocktail reception | Three course meal | Silent auction | Raffle | Music | Dancing | Entertainment 🦋 ... See MoreSee Less
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Looking forward to it!
Stefan Galo
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