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14 November 2019

Nikki Lilly Youngest Ever Bafta Special Award Winner

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6 November 2019

The Butterfly AVM Charity Dinner and Dance 2019

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6 November 2019

Nikki Lilly Speaking on ITV London NEWS

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6 November 2019

Vascular Anomalies Special Interest Group brings together a range of specialists this December

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6 November 2019

BREAKTHROUGH IN AVM RESEARCH!

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16 September 2019

The boy was dying. Zebrafish helped save his life

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7 February 2019

The Butterfly AVM Olympians

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The Butterfly AVM Charity

2 weeks ago

The Butterfly AVM Charity

Nikki Lilly chats to queen of positivity Katie Piper. They share their experiences of living with a visual difference, coping with lots of surgery and tips for finding the right boyfriend.
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Tune in CBBC 18:50

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Nikki Lilly Meets... - Series 1: 10. Katie Piper

www.bbc.co.uk

Nikki Lilly chats to queen of positivity Katie Piper.
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The Butterfly AVM Charity

2 weeks ago

The Butterfly AVM Charity

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The Special Award 2019 – Nikki Lilly

www.bafta.org

In a time where social issues affecting future generations have dominated the news, BAFTA’s Special Award recipient this year is inspirational British vlogger, YouTuber and television presenter Nikki Lilly – the first time the award has been given to a teenager.
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👏👏😘😘❤️

The Butterfly AVM Charity

2 weeks ago

The Butterfly AVM Charity
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You go girl my dear AVM friend.xx

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4 weeks ago

The Butterfly AVM Charity

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Read Emilia's story

www.justgiving.com

Emilia is raising money to help The Butterfly AVM Charity Limited
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The Butterfly AVM Charity

1 month ago

The Butterfly AVM Charity
It’s “FUNDRAISER FRIDAY” Every Friday we will dedicate all social media platforms to those who have raised funds for our charity. We can’t wait to share your achievements, along with pictures and videos, with our followers. But we do need this content! Please email us at pr@butterflyavmcharity.org.uk

It’s “FUNDRAISER FRIDAY”

Every Friday we will dedicate all social media platforms to those who have raised funds for our charity.

We can’t wait to share your achievements, along with pictures and videos, with our followers.

But we do need this content! Please email us at pr@butterflyavmcharity.org.uk ... See MoreSee Less

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  • Comments: 2

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BRAVO

👏👏👏

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Instagram post 2192744888365708059_14441900738 #Repost @nikkililly_ ・・・ i don’t even know what to say... thank you so much @bafta for honouring me with SUCH a special award, i still can’t believe it’s mine. i couldn’t have had a better night and couldn’t have spent it with more talented, lovely, humble and kind people. massive well done to my girl @lindseyjrussell for winning presenter of the year! i love u, no one deserved it more☺️also so good to finally meet and chat with @bellaramsey! congratulations on your win beautiful. you are immensely talented💓thank you to @cbbc for taking a chance on little 11 year old Nikki, enabling me to tell my story and helping me to break down the barriers of what so many today believe they ‘should’ look like or how their life ‘should’ be. there is so much pressure and stress on my generation from all different angles, so i hope in my tiny corner of the internet or tv i can be an escapism to those who need it. just THANK YOU, THANK YOU, THANK YOU❣️this is a night that i will cherish forever.
Instagram post 2191466142291570018_14441900738 #Repost @officialtgiof So Proud of you Nikki x ・・・ Fifteen year-old YouTuber, presenter and charity campaigner @nikkililly_ this week became the youngest ever recipient of a @bafta Special Award, celebrating her outstanding contribution to children's media. She's rightfully been recognised for raising awareness of social issues and inspiring young people around the globe in the face of extraordinary personal challenges. Nikki was diagnosed with arteriovenous malformation at six years old; a life-threatening medical condition which has resulted in a visible difference to her physical appearance. Despite this, she started a vlog aged just eight, covering topics including disability, cyber bullying, #mentalhealth #baking (she won Junior @britishbakeoff in 2016) and #beauty. Oh and she's also launched the @butterflyavm charity with her Dad and has interviewed the likes of @jeremycorbyn and Teresa May. And let's not forget the @prideofbritain ‘Child of Courage' award she scooped too! She's achieved all these mind-blowingly inspiration things, while enduring 38 operations to help her disability. She's #brave she's #strong she's beautiful and she's an inspiration to every girl, teen and woman on the planet. Described as a 'pioneer for her generation', we think you're truly incredible Nikki! 🥰 #wcw #embracingdifference #live #learn #thrive #inspirationalwomen
Instagram post 2187729783466926354_14441900738 FUNDRAISER FRIDAY! . Good morning to all our followers. . @koupeslondon will be donating a percentage of takings, to our charity, from the Monkfrith School Xmas fair. . Thank you so much!!!
Instagram post 2182786573434883407_14441900738 FUNDRAISER FRIDAY! . Tyser Girl’s Northumberland Coastal Marathon . In February 2020 Annabel and Emilia will take part in the Northumberland Coastal Marathon. . Please take a moment to read their story and to understand the story of their friend Amy. . Link in Bio
Instagram post 2178408800402617313_14441900738 @jamieoliver thank you for your continued support for our @nikkililly_ it is very much appreciated. The kindness you have shown will be remembered always.
Instagram post 2177595393474814043_14441900738 It’s “FUNDRAISER FRIDAY” Every Friday we will dedicate all social media platforms to those who have raised funds for our charity. We can’t wait to share your achievements, along with pictures and videos, with our followers. But we do need this content! Please email us at pr@butterflyavmcharity.org.uk If you are in this picture, message below and we will tag you in
Instagram post 2177070767363360987_14441900738 We are so proud "Nikki has been officially recognised at next month's British Academy Children's Awards, where she will become the youngest ever recipient of a Bafta Special Award." BBC . @nikkililly_ @bafta #butterflyavm #charity . Link in bio
Instagram post 2176412009205533491_14441900738 That’s a great top 10! . Can you think of any other ways? . Comment below or email us at pr@butterflyavmcharity.org.uk with your idea(s) #charity #avmbutterfly
Instagram post 2175533468259710125_14441900738 It’s true. . Our charity has greatly helped the lives of AVM sufferers and their families. #charity #butterflyavm
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  • About
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