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News

12 August 2022

Saturday 12th November 2022 sees the welcome return of the Butterfly AVM Charity Ball!

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28 March 2022

UCL RFH AVM research update

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27 October 2021

A Computational Framework for Pre-Interventional Planning of Peripheral Arteriovenous Malformations Dept of Mechanical Engineering, University College London

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25 October 2021

Elena’s Kilimanjaro Climb

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24 May 2021

The Royal Free & UCL AVM Research Programme Update

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9 December 2020

We did it!

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8 December 2020

Research that we are funding at The Francis Crick institute

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10 July 2020

Support us via Amazon Smile

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28 February 2020

Tyser girl’s Northumberland Coastal Marathon

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5 February 2020

Research Update. Why your contribution is so important!

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    The Butterfly AVM Charity

    3 months ago

    The Butterfly AVM Charity
    Congratulations to George & Cos for completing The Vitality 10k Challenge and raising over an amazing £1000 for our Charity. Thank you so much for all your never ending support. Its still not too late to donate xx https://www.justgiving.com/fundraising/avm10k?utm_source=Sharethis&utm_medium=fundraising&utm_content=avm10k&utm_campaign=pfp-email&utm_term=e4ab5b27ed3246b281240b8b0217446b.

    Congratulations to George & Cos for completing The Vitality 10k Challenge and raising over an amazing £1000 for our Charity. Thank you so much for all your never ending support. Its still not too late to donate xx
    www.justgiving.com/fundraising/avm10k?utm_source=Sharethis&utm_medium=fundraising&utm_content=avm....     ... See MoreSee Less

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    The Butterfly AVM Charity

    4 months ago

    The Butterfly AVM Charity

    These two living legends Cos & George are again running to raise funds for our Charity. We thank you for your continued and never ending support. Please donate so we can make a change to AVM sufferers lives. Every penny makes a difference.

    www.justgiving.com/fundraising/avm10k     ... See MoreSee Less

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    Butterfly AVM 10K Cos and George

    www.justgiving.com

    Help Costas and George raise money to support The Butterfly AVM Charity Limited
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    The Butterfly AVM Charity

    5 months ago

    The Butterfly AVM Charity

    I am honored to be named amongst a select group of amazing women in history. But each and everyone of us are special and we all have the power determination and courage to make a change xx Close your eyes make a wish, then open them and make your dreams a reality x
    33. Nikki Lilly (2004-present)
    “I did not choose to be born with a chronic illness, but I do choose to make the most of every single day of my life and make every second count.”
    As famous women in history go, Nikki Lilly has the edge. Living with a rare medical condition called AVM, which affects her appearance, however its not stopped her forging her own path.
    Her You Tube channel, where she explores her love o singing and makeup and which she uses to share her experiences of living with a visible difference.
    The youngest ever recipient of the BAFTA Special Award, in 2019, she was also awarded the International Emmy Kids Awards for her episode of the CBBC series My Life, Nikki Lilly Meets.

    www.goodto.com/entertainment/famous-women-history-654635     ... See MoreSee Less

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    101 famous women in history to celebrate on International Women’s Day

    www.goodto.com

    There are so many famous women in history - both from yesteryear and yesterday - some we recognise from every International Women's Day and others who
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    The Butterfly AVM Charity

    5 months ago

    The Butterfly AVM Charity

    Nikki Lilly on Glow Up Does Red Nose Day: 'I've always thought make-up was magical' - BBC Three ... See MoreSee Less

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    Nikki Lilly on Glow Up Does Red Nose Day: 'I've always thought make-up was magical' - BBC Three

    www.bbc.co.uk

    Nikki is taking part in BBC Three's Comic Relief special Glow Up Does Red Nose Day, alongside radio presenter Roman Kemp, BBC Radio 1Xtra's Snoochie Shy, winner of RuPaul's Drag Race UK series one The Vivienne and musician Lady Leshurr.
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    The Butterfly AVM Charity

    5 months ago

    The Butterfly AVM Charity

    Thank you so much Abi, you are a star xx Please help Abi in any way you can. No donation is too small. Lets help make that change

    Abis Fitness Fest
    "I am raising money for The Butterfly AVM Charity because Nikki Lilly is my hero and I want to help her x"

    www.justgiving.com/fundraising/melanie-phillips12     ... See MoreSee Less

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    Abis Fitness Fest

    www.justgiving.com

    Help Melanie Phillips raise money to support The Butterfly AVM Charity Limited
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    Thanks for your support The Butterfly AVM Charity 🥰

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