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News

24 May 2021

The Royal Free & UCL AVM Research Programme Update

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9 December 2020

We did it!

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8 December 2020

Research that we are funding at The Francis Crick institute

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10 July 2020

Support us via Amazon Smile

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28 February 2020

Tyser girl’s Northumberland Coastal Marathon

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5 February 2020

Research Update. Why your contribution is so important!

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9 January 2020

Tom Dyer – Table Mountain

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14 November 2019

Nikki Lilly Youngest Ever Bafta Special Award Winner

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6 November 2019

The Butterfly AVM Charity Dinner and Dance 2019

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6 November 2019

Nikki Lilly Speaking on ITV London NEWS

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    The Butterfly AVM Charity

    1 week ago

    The Butterfly AVM Charity

    Announcement!
    The most inspirational night of the year has sadly been rescheduled to November 12th 2022 due to Covid. Please put the new date down in your diaries, its going to be bigger and better than ever before.
    Please share x
    To reserve your seats or table please email george@butterflyavmcharity.org.uk
    Due to our amazing support this event is always sold out so hold you places super early.     ... See MoreSee Less

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    The Butterfly AVM Charity

    2 weeks ago

    The Butterfly AVM Charity
    October is a very special Month for our Charity as it is AVM Awareness Month. Charities like ourselves have come so far in raising Awareness, supporting AVM sufferers and their families and raising much needed funds for AVM research currently taking place in many research centres across the UK. Our funding has resulted in many breakthoughs in the understanding of AVMs and we hope that in the near future definitive treatments will be established and AVM sufferers will have the chance of leading long happy healthy lives. So if you are thinking of running a race, jumping out of a plane, baking a cake, or any other fund raising activity, please why not raise funds for us xx Together we can make a change xx Please share xx https://www.butterflyavmcharity.org.uk/

    October is a very special Month for our Charity as it is AVM Awareness Month. Charities like ourselves have come so far in raising Awareness, supporting AVM sufferers and their families and raising much needed funds for AVM research currently taking place in many research centres across the UK. Our funding has resulted in many breakthoughs in the understanding of AVMs and we hope that in the near future definitive treatments will be established and AVM sufferers will have the chance of leading long happy healthy lives. So if you are thinking of running a race, jumping out of a plane, baking a cake, or any other fund raising activity, please why not raise funds for us xx Together we can make a change xx Please share xx
    www.butterflyavmcharity.org.uk/     ... See MoreSee Less

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    The Butterfly AVM Charity

    2 weeks ago

    The Butterfly AVM Charity

    Sadly, in June 2021, Vincent O'Brien suffered a fatal brain haemorrhage caused by an AVM. His daughter, Sinead, decided that she wanted to raise money for a good cause in his honour and decided to participate in a 10km race with her partner Robson.
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    Robson & Sinead's Run in Memory of Vincent O'Brien

    www.justgiving.com

    Help Robson Turner raise money to support The Butterfly AVM Charity Limited
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    Thank you for sharing 🙌

    The Butterfly AVM Charity

    2 weeks ago

    The Butterfly AVM Charity

    October is AVM Awareness Month x
    How about supporting our Charity and also being able to enjoy a cup of tea, coffee, hot chocolate or what ever takes your fancy in one our our Charity Mugs xx Together we can make a change

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    Shop - The Butterfly AVM Charity

    www.butterflyavmcharity.org.uk

    Amys StoryIn 2014, aged just 20, while visiting Sardinia, Amy collapsed from a brain haemorrhage caused by an Arteriovenous malformation (AVM).when life-saving operations began to rob her of her sight, the Berwick artist felt as if one of her most important tools had been taken away.But despite the....
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    The Butterfly AVM Charity

    2 weeks ago

    The Butterfly AVM Charity

    Amys Story

    In 2014, aged just 20, while visiting Sardinia, Amy collapsed from a brain haemorrhage caused by an Arteriovenous malformation (AVM).when life-saving operations began to rob her of her sight, the Berwick artist felt as if one of her most important tools had been taken away.But despite the major problems caused by her AVM at the age of 27 she's about to embark on her first major exhibition. Keep on inspiring Amy you are a star x
    www.chroniclelive.co.uk/news/north-east-news/berwick-artist-who-cant-see-21754515     ... See MoreSee Less

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    Artist robbed of sight by operation shares her stunning drawings

    www.chroniclelive.co.uk

    Amy Izat is preparing to travel from Northumberland to London to share her work at an exhibition showcasing artists with sight loss
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    Tweets by @Butterfly_AVM

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    We are pleased to announce the latest update from We are pleased to announce the latest update from our research programme. . Please clink link in bio to view details
    From all us at The Butterfly AVM Charity have a Me From all us at The Butterfly AVM Charity have a Merry Christmas & a Happy New Year🎄enjoy your day x #merrychristmas #merrychristmas2020 #butterflyavmcharity
    Let’s get to £20k!! Link in our bio takes you s Let’s get to £20k!! Link in our bio takes you straight to the donation page of our website 🦋 #butterflyavmcharity #charitynight #zoomevent #donate #donations #nikkililly
    WOW! Thank you all so much for your support 💙 W WOW! Thank you all so much for your support 💙 We hope you’re having as much fun as we are tonight! @iamspelmann what an amazing show, along with a challenging quiz by @nikkililly_ And now for some more @djtonyperry with the tunes 🎶🎶 #butterflyavmcharity #charity #charityevent #zoom #zoomnight #nikkililly
    How amazing was that! @iamspelmann that is amazing How amazing was that! @iamspelmann that is amazing!! @cmbdmc is so confused!!!
    WE ARE LIVE!! With @djtonyperry on the decks getti WE ARE LIVE!! With @djtonyperry on the decks getting us warmed up 🎶🎉🍾💃🏽🕺🏽 Are you watching? #butterflyavmcharity #zoom #zoomevent #nikkililly #charityevent
    Almost ready!!! @djtonyperry are you ready?!? Almost ready!!! @djtonyperry are you ready?!?
    Tonight’s the night! Tickets can be purchased di Tonight’s the night! Tickets can be purchased directly via the link in our bio 🦋 Please share this post to support our wonderful charity and get everyone involved in tonight’s special event! #butterflyavmcharity #butterflyavm #charity #charitynight #nikkililly #donations #prizes #quiznight
    Huge THANK YOU to all our amazing sponsors for eve Huge THANK YOU to all our amazing sponsors for everything you do to support our charity 👏🏼. For more information about tomorrow’s event click the link in our bio, have you bought your ticket yet? #butterflyavmcharity #charity #zoomevent #nikkililly #avm #awareness #donations #prizes
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