• About
  • Team
  • AVMs
  • News
  • Nikki Lilly
  • Fundraising
  • Shop
  • Contact
    • Treatment Centres
Donate Now Donate via

News

9 December 2020

We did it!

Read more
8 December 2020

Research that we are funding at The Francis Crick institute

Read more
10 July 2020

Support us via Amazon Smile

Read more
28 February 2020

Tyser girl’s Northumberland Coastal Marathon

Read more
5 February 2020

Research Update. Why your contribution is so important!

Read more
9 January 2020

Tom Dyer – Table Mountain

Read more
14 November 2019

Nikki Lilly Youngest Ever Bafta Special Award Winner

Read more
6 November 2019

The Butterfly AVM Charity Dinner and Dance 2019

Read more
6 November 2019

Nikki Lilly Speaking on ITV London NEWS

Read more
6 November 2019

Vascular Anomalies Special Interest Group brings together a range of specialists this December

Read more

Posts navigation

Older posts

Sign up for our newsletter

Be alerted of news and great fund raising stories!

    Follow us on

    Comments Box SVG iconsUsed for the like, share, comment, and reaction icons

    The Butterfly AVM Charity

    3 weeks ago

    The Butterfly AVM Charity

    This year will be 5 years since we lost the legend that is Andrew Perkins, all that knew him will know he was such a great guy and had such a fantastic attitude to life. He never let his health issues get him down and was determined to live his life to the max!

    In May I will be running my first ever marathon and thought it would be a great way to raise funds for The Butterfly AVM Charity in his memory.

    One saying he loved was 'If you wanna see the rainbow, you gotta put up with the rain' .... I have found myself repeating this mantra on some tough training runs and his ongoing inspiration has certainly spurred me on!

    Any amount small or large is appreciated and will give me extra motivation to push on through!

    www.justgiving.com/fundraising/adam-sadler11     ... See MoreSee Less

    Link thumbnail

    Adam's Peterborough marathon page

    www.justgiving.com

    Help Adam Sadler raise money to support The Butterfly AVM Charity Limited
    View on Facebook
    ·Share

    Share on FacebookShare on TwitterShare on Linked InShare by Email

    • Likes: 3
    • Shares: 1
    • Comments: 0

    Comment on Facebook

    The Butterfly AVM Charity

    4 weeks ago

    The Butterfly AVM Charity
    Video image

    Here is the video we’ve all been waiting for, a chatty Q&A with the outstanding Nikki Lilly! We hope you enjoy it, please feel free to like and subscribe!🌸

    Watch here: youtu.be/gL_XhpPoUy4     ... See MoreSee Less

    View on Facebook
    ·Share

    Share on FacebookShare on TwitterShare on Linked InShare by Email

    • Likes: 2
    • Shares: 2
    • Comments: 0

    Comment on Facebook

    The Butterfly AVM Charity

    1 month ago

    The Butterfly AVM Charity
    Our AVM Research team at the Royal Free are collaborating with the Balabani lab in UCL to use microfluidic systems to model AVMs in vitro. This type of research is vital to push the boundaries and build up a greater understanding about the structural movement of AVMs and how they may react to treatments.Image attachmentImage attachment

    Our AVM Research team at the Royal Free are collaborating with the Balabani lab in UCL to use microfluidic systems to model AVMs in vitro. This type of research is vital to push the boundaries and build up a greater understanding about the structural movement of AVMs and how they may react to treatments. ... See MoreSee Less

    View on Facebook
    ·Share

    Share on FacebookShare on TwitterShare on Linked InShare by Email

    • Likes: 23
    • Shares: 10
    • Comments: 0

    Comment on Facebook

    The Butterfly AVM Charity

    2 months ago

    The Butterfly AVM Charity

    Today Archie and some friends are running a spur of the moment 20kg weighted marathon, with Archie raising funds for the Butterfly AVM Charity.

    www.justgiving.com/fundraising/archie-douglas-miller     ... See MoreSee Less

    Link thumbnail

    Weighted Marathon

    www.justgiving.com

    Help Poppy Izat raise money to support The Butterfly AVM Charity Limited
    View on Facebook
    ·Share

    Share on FacebookShare on TwitterShare on Linked InShare by Email

    • Likes: 2
    • Shares: 0
    • Comments: 0

    Comment on Facebook

    The Butterfly AVM Charity

    2 months ago

    The Butterfly AVM Charity

    Information about AVMs from the Leeds teaching hospital.

    flipbooks.leedsth.nhs.uk/LN001031.pdf     ... See MoreSee Less

    flipbooks.leedsth.nhs.uk

    flipbooks.leedsth.nhs.uk

    View on Facebook
    ·Share

    Share on FacebookShare on TwitterShare on Linked InShare by Email

    • Likes: 0
    • Shares: 0
    • Comments: 0

    Comment on Facebook

    Follow us on

    Follow me on Twitter

    Tweets by @Butterfly_AVM

    Follow us on

    From all us at The Butterfly AVM Charity have a Me From all us at The Butterfly AVM Charity have a Merry Christmas & a Happy New Year🎄enjoy your day x #merrychristmas #merrychristmas2020 #butterflyavmcharity
    Let’s get to £20k!! Link in our bio takes you s Let’s get to £20k!! Link in our bio takes you straight to the donation page of our website 🦋 #butterflyavmcharity #charitynight #zoomevent #donate #donations #nikkililly
    WOW! Thank you all so much for your support 💙 W WOW! Thank you all so much for your support 💙 We hope you’re having as much fun as we are tonight! @iamspelmann what an amazing show, along with a challenging quiz by @nikkililly_ And now for some more @djtonyperry with the tunes 🎶🎶 #butterflyavmcharity #charity #charityevent #zoom #zoomnight #nikkililly
    How amazing was that! @iamspelmann that is amazing How amazing was that! @iamspelmann that is amazing!! @cmbdmc is so confused!!!
    WE ARE LIVE!! With @djtonyperry on the decks getti WE ARE LIVE!! With @djtonyperry on the decks getting us warmed up 🎶🎉🍾💃🏽🕺🏽 Are you watching? #butterflyavmcharity #zoom #zoomevent #nikkililly #charityevent
    Almost ready!!! @djtonyperry are you ready?!? Almost ready!!! @djtonyperry are you ready?!?
    Tonight’s the night! Tickets can be purchased di Tonight’s the night! Tickets can be purchased directly via the link in our bio 🦋 Please share this post to support our wonderful charity and get everyone involved in tonight’s special event! #butterflyavmcharity #butterflyavm #charity #charitynight #nikkililly #donations #prizes #quiznight
    Huge THANK YOU to all our amazing sponsors for eve Huge THANK YOU to all our amazing sponsors for everything you do to support our charity 👏🏼. For more information about tomorrow’s event click the link in our bio, have you bought your ticket yet? #butterflyavmcharity #charity #zoomevent #nikkililly #avm #awareness #donations #prizes
    Have a look at some amazing new prizes you could w Have a look at some amazing new prizes you could win in tomorrow’s prize draw! Huge thanks to @aoiastudio @koupeslondon @iam.yodi @luxcess__ and @nikkililly_ for your donations 👏🏼👏🏼 Head over to our website to buy your prize draw tickets! Link in bio #butterflyavmcharity #zoom #zoomevent #nikkililly #charitynight
    Load More… Follow on Instagram
    Copyright Butterfly AVM Charity © 2020 | All rights reserved | Privacy Policy
    This website uses cookies to improve your experience. We'll assume you're ok with this, but you can opt-out if you wish. Cookie settingsACCEPT
    Privacy & Cookies Policy

    Privacy Overview

    This website uses cookies to improve your experience while you navigate through the website. Out of these cookies, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may have an effect on your browsing experience.
    Necessary
    Always Enabled

    Necessary cookies are absolutely essential for the website to function properly. This category only includes cookies that ensures basic functionalities and security features of the website. These cookies do not store any personal information.

    Non-necessary

    Any cookies that may not be particularly necessary for the website to function and is used specifically to collect user personal data via analytics, ads, other embedded contents are termed as non-necessary cookies. It is mandatory to procure user consent prior to running these cookies on your website.

    SAVE & ACCEPT
    • About
    • Team
    • AVMs
    • News
    • Nikki Lilly
    • Fundraising
    • Shop
    • Contact
      • Treatment Centres
      • Back