The Butterfly AVM Charity is the first specific AVM charity in the UK. Together we can make a change, build awareness, support and raise funds for much needed research into the understanding of facial, extremity and brain AVMs. Due to the rarity of AVMs in the population and lack of funding, the advancements required to enable doctors and surgeons to increase the success rate of treatments has been slow. Our Charity was created with a dream to redress this by providing directional funding to Research institutions in the hope that definitive treatments are discovered.

I would like to thank Dr Veronica Kinsler, Dr Maanasa Polubothu, Mr David Dunaway, Great Ormond Street, The Royal Free, The UCL Hospitals and The Francis Crick Institute for their constant support, medical expertise and knowledge, which is second to none and to all our Butterfly AVM Taskforce and volunteers who unselfishly give up their valuable time to help us on journey.

Thank you.

Director of The Butterfly AVM Charity Limited

Our Charity has greatly helped the lives of AVM sufferers and their families, by offering information and advice on who to turn to for help.

GETTING REFERRED

An AVM diagnosis changes lives — not just for the person diagnosed, but for friends and family too. Our Facebook group is a safe, understanding place to share, learn, and lift each other up. Together, we find strength, hope, and community.

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Nikki Lilly – Charity Campaigner, Founder of The Butterfly AVM Charity, Digital Creator & Presenter

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