Our mission
Riase funds
To raise much needed funds for specific research into peripheral, brain & extremity AVMs (Arteriovenous Malformations) with the aim to improve treatments and find a cure.
Raise awareness
To raise much needed funds for specific research into peripheral, brain & extremity AVMs (Arteriovenous Malformations) with the aim to improve treatments and find a cure.
Give support
To raise much needed funds for specific research into peripheral, brain & extremity AVMs (Arteriovenous Malformations) with the aim to improve treatments and find a cure.
Provide information
To raise much needed funds for specific research into peripheral, brain & extremity AVMs (Arteriovenous Malformations) with the aim to improve treatments and find a cure.
Our website
Before our daughter Nikki was diagnosed with a Craniofacial AVM (an arteriovenous malformation) 8 years ago we had never even heard of this illness. Like most concerned fathers would do in this position, I became an internet expert and was overloaded with sites providing a mixture of valuable and invaluable information and came across things that scared the hell out of me! Most of the available information online dealt with AVMS of the brain, with very little about facial and extremity AVMs. Due to the rarity of this illness and a lack of understanding about AVMs we felt that there needed to be a concerted effort to provide sufferers with an up-to-date website, as well as a service to inform families about the latest treatments and support available, whilst creating a platform to raise the much needed funds into AVM research. Our fundamental objective is to inform the general public about AVMs, and let them be inspired and moved by the stories of AVM sufferers. With readily available information we hope our charity website will help those living with an AVMs.
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The Butterfly AVM Charity
10 months ago
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The Butterfly AVM Charity
10 months ago
✨🦋 We’re happy to announce that tickets for The Butterfly AVM Charity Ball on the 11th November, 2023 are now ON SALE!!! 🦋✨
Doors open: 5:30pm
Dinner served: 6:30pm
What to expect:
- drinks reception 🍸
- three course meal 🥘
- silent auction 🙇🏽♀️
- raffle 🎁
- music 🎤
- dancing & entertainment 🕺🏽
Tickets: £70
Address: The Meridian Grand, Advent Way, London, N18 3AF
We can’t wait to see you there!
🎟️⏳ TICKETS: uk.givergy.com/ButterflyAVMCharityBall/?controller=tickets ... See MoreSee Less
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By chance does anyone needs ticket? I ended up with extra than I needed,you know system online messed up, if you need them kindly like my comment and send me a direct message thanks, please I'd hate for them to go to waste.
The Butterfly AVM Charity
10 months ago
A quick message from our very own Nikki Lilly 💜
Tickets to The Butterfly AVM Charity Ball 2023 are out NOW and can be purchased via the link below! 🦋
uk.givergy.com/ButterflyAVMCharityBall/?controller=home ... See MoreSee Less
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Loving the hair !!
The Butterfly AVM Charity
10 months ago
✨🦋 We’re happy to announce that tickets for The Butterfly AVM Charity Ball on the 11th November, 2023 are now ON SALE!!! 🦋✨
Doors open: 5:30pm
Dinner served: 6:30pm
What to expect:
⁃ drinks reception 🍸
⁃ three course meal 🥘
⁃ silent auction 🙇🏽♀️
⁃ raffle 🎁
⁃ music 🎤
⁃ dancing & entertainment 🕺🏽
Tickets: £70
Address: The Meridian Grand, Advent Way, London, N18 3AF
We can’t wait to see you there!
You can find the link to buy tickets below and in the event bio 🎟️⏳
uk.givergy.com/ButterflyAVMCharityBall/?controller=home ... See MoreSee Less
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When this happens, it's usually because the owner only shared it with a small group of people, changed who can see it or it's been deleted.Share on FacebookShare on TwitterShare on Linked InShare by Email
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Just got my tickets for our first ever one! Looking forward to it!
The Butterfly AVM Charity
10 months ago
✨ 🦋 The Butterfly AVM Charity Ball will be back bigger and better than ever on Saturday 11th November 2023! ✨🦋 Tickets on Sale Friday 7th July! Set a Reminder!
✨ 5.30pm - 2.00am, Dinner - 6.30pm ✨
✨ £70.00 ✨
✨ The Meridian Grand, Advent Way, London, N18 3AF ✨
🦋 Cocktail reception | Three course meal | Silent auction | Raffle | Music | Dancing | Entertainment 🦋 ... See MoreSee Less
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Looking forward to it!
Stefan Galo
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