• About
  • Team
  • AVMs
  • News
  • Nikki Lilly
  • Fundraising
  • Shop
    • Charity Ball
  • Contact
    • Treatment Centres
Donate Now Donate via

News

28 March 2022

UCL RFH AVM research update

Read more
24 May 2021

The Royal Free & UCL AVM Research Programme Update

Read more
8 December 2020

Research that we are funding at The Francis Crick institute

Read more
5 February 2020

Research Update. Why your contribution is so important!

Read more

Sign up for our newsletter

Be alerted of news and great fund raising stories!

    Follow us on

    Comments Box SVG iconsUsed for the like, share, comment, and reaction icons

    The Butterfly AVM Charity

    3 months ago

    The Butterfly AVM Charity
    Congratulations to George & Cos for completing The Vitality 10k Challenge and raising over an amazing £1000 for our Charity. Thank you so much for all your never ending support. Its still not too late to donate xx https://www.justgiving.com/fundraising/avm10k?utm_source=Sharethis&utm_medium=fundraising&utm_content=avm10k&utm_campaign=pfp-email&utm_term=e4ab5b27ed3246b281240b8b0217446b.

    Congratulations to George & Cos for completing The Vitality 10k Challenge and raising over an amazing £1000 for our Charity. Thank you so much for all your never ending support. Its still not too late to donate xx
    www.justgiving.com/fundraising/avm10k?utm_source=Sharethis&utm_medium=fundraising&utm_content=avm....     ... See MoreSee Less

    View on Facebook
    ·Share

    Share on FacebookShare on TwitterShare on Linked InShare by Email

    • Likes: 31
    • Shares: 0
    • Comments: 0

    Comment on Facebook

    The Butterfly AVM Charity

    4 months ago

    The Butterfly AVM Charity

    These two living legends Cos & George are again running to raise funds for our Charity. We thank you for your continued and never ending support. Please donate so we can make a change to AVM sufferers lives. Every penny makes a difference.

    www.justgiving.com/fundraising/avm10k     ... See MoreSee Less

    Link thumbnail

    Butterfly AVM 10K Cos and George

    www.justgiving.com

    Help Costas and George raise money to support The Butterfly AVM Charity Limited
    View on Facebook
    ·Share

    Share on FacebookShare on TwitterShare on Linked InShare by Email

    • Likes: 13
    • Shares: 4
    • Comments: 0

    Comment on Facebook

    The Butterfly AVM Charity

    5 months ago

    The Butterfly AVM Charity

    I am honored to be named amongst a select group of amazing women in history. But each and everyone of us are special and we all have the power determination and courage to make a change xx Close your eyes make a wish, then open them and make your dreams a reality x
    33. Nikki Lilly (2004-present)
    “I did not choose to be born with a chronic illness, but I do choose to make the most of every single day of my life and make every second count.”
    As famous women in history go, Nikki Lilly has the edge. Living with a rare medical condition called AVM, which affects her appearance, however its not stopped her forging her own path.
    Her You Tube channel, where she explores her love o singing and makeup and which she uses to share her experiences of living with a visible difference.
    The youngest ever recipient of the BAFTA Special Award, in 2019, she was also awarded the International Emmy Kids Awards for her episode of the CBBC series My Life, Nikki Lilly Meets.

    www.goodto.com/entertainment/famous-women-history-654635     ... See MoreSee Less

    Link thumbnail

    101 famous women in history to celebrate on International Women’s Day

    www.goodto.com

    There are so many famous women in history - both from yesteryear and yesterday - some we recognise from every International Women's Day and others who
    View on Facebook
    ·Share

    Share on FacebookShare on TwitterShare on Linked InShare by Email

    • Likes: 11
    • Shares: 3
    • Comments: 0

    Comment on Facebook

    The Butterfly AVM Charity

    5 months ago

    The Butterfly AVM Charity

    Nikki Lilly on Glow Up Does Red Nose Day: 'I've always thought make-up was magical' - BBC Three ... See MoreSee Less

    Link thumbnail

    Nikki Lilly on Glow Up Does Red Nose Day: 'I've always thought make-up was magical' - BBC Three

    www.bbc.co.uk

    Nikki is taking part in BBC Three's Comic Relief special Glow Up Does Red Nose Day, alongside radio presenter Roman Kemp, BBC Radio 1Xtra's Snoochie Shy, winner of RuPaul's Drag Race UK series one The Vivienne and musician Lady Leshurr.
    View on Facebook
    ·Share

    Share on FacebookShare on TwitterShare on Linked InShare by Email

    • Likes: 6
    • Shares: 0
    • Comments: 0

    Comment on Facebook

    The Butterfly AVM Charity

    5 months ago

    The Butterfly AVM Charity

    Thank you so much Abi, you are a star xx Please help Abi in any way you can. No donation is too small. Lets help make that change

    Abis Fitness Fest
    "I am raising money for The Butterfly AVM Charity because Nikki Lilly is my hero and I want to help her x"

    www.justgiving.com/fundraising/melanie-phillips12     ... See MoreSee Less

    Link thumbnail

    Abis Fitness Fest

    www.justgiving.com

    Help Melanie Phillips raise money to support The Butterfly AVM Charity Limited
    View on Facebook
    ·Share

    Share on FacebookShare on TwitterShare on Linked InShare by Email

    • Likes: 1
    • Shares: 0
    • Comments: 1

    Comment on Facebook

    Thanks for your support The Butterfly AVM Charity 🥰

    Follow us on

    Follow me on Twitter

    Tweets by @Butterfly_AVM

    Follow us on

    Follow on Instagram
    Copyright Butterfly AVM Charity © 2020 | All rights reserved | Privacy Policy
    This website uses cookies to improve your experience. We'll assume you're ok with this, but you can opt-out if you wish. Cookie settingsACCEPT
    Privacy & Cookies Policy

    Privacy Overview

    This website uses cookies to improve your experience while you navigate through the website. Out of these cookies, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may have an effect on your browsing experience.
    Necessary
    Always Enabled
    Necessary cookies are absolutely essential for the website to function properly. This category only includes cookies that ensures basic functionalities and security features of the website. These cookies do not store any personal information.
    Non-necessary
    Any cookies that may not be particularly necessary for the website to function and is used specifically to collect user personal data via analytics, ads, other embedded contents are termed as non-necessary cookies. It is mandatory to procure user consent prior to running these cookies on your website.
    SAVE & ACCEPT
    • About
    • Team
    • AVMs
    • News
    • Nikki Lilly
    • Fundraising
    • Shop
      • Charity Ball
      • Back
    • Contact
      • Treatment Centres
      • Back