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News

20 January 2023

UCL RFH AVM research update Jan 2023

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28 March 2022

UCL RFH AVM research update

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24 May 2021

The Royal Free & UCL AVM Research Programme Update

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8 December 2020

Research that we are funding at The Francis Crick institute

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5 February 2020

Research Update. Why your contribution is so important!

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The Butterfly AVM Charity

5 months ago

The Butterfly AVM Charity
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The Butterfly AVM Charity

5 months ago

The Butterfly AVM Charity
✨🦋 We’re happy to announce that tickets for The Butterfly AVM Charity Ball on the 11th November, 2023 are now ON SALE!!! 🦋✨ Doors open: 5:30pm Dinner served: 6:30pm What to expect: - drinks reception 🍸 - three course meal 🥘 - silent auction 🙇🏽‍♀️ - raffle 🎁 - music 🎤 - dancing & entertainment 🕺🏽 Tickets: £70 Address: The Meridian Grand, Advent Way, London, N18 3AF We can’t wait to see you there! 🎟️⏳ TICKETS: https://uk.givergy.com/ButterflyAVMCharityBall/?controller=tickets

✨🦋 We’re happy to announce that tickets for The Butterfly AVM Charity Ball on the 11th November, 2023 are now ON SALE!!! 🦋✨

Doors open: 5:30pm
Dinner served: 6:30pm

What to expect:
- drinks reception 🍸
- three course meal 🥘
- silent auction 🙇🏽‍♀️
- raffle 🎁
- music 🎤
- dancing & entertainment 🕺🏽

Tickets: £70

Address: The Meridian Grand, Advent Way, London, N18 3AF

We can’t wait to see you there!

🎟️⏳ TICKETS: uk.givergy.com/ButterflyAVMCharityBall/?controller=tickets ... See MoreSee Less

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By chance does anyone needs ticket? I ended up with extra than I needed,you know system online messed up, if you need them kindly like my comment and send me a direct message thanks, please I'd hate for them to go to waste.

The Butterfly AVM Charity

5 months ago

The Butterfly AVM Charity
Play

A quick message from our very own Nikki Lilly 💜

Tickets to The Butterfly AVM Charity Ball 2023 are out NOW and can be purchased via the link below! 🦋

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Loving the hair !!

The Butterfly AVM Charity

5 months ago

The Butterfly AVM Charity

✨🦋 We’re happy to announce that tickets for The Butterfly AVM Charity Ball on the 11th November, 2023 are now ON SALE!!! 🦋✨

Doors open: 5:30pm
Dinner served: 6:30pm

What to expect:
⁃ drinks reception 🍸
⁃ three course meal 🥘
⁃ silent auction 🙇🏽‍♀️
⁃ raffle 🎁
⁃ music 🎤
⁃ dancing & entertainment 🕺🏽

Tickets: £70

Address: The Meridian Grand, Advent Way, London, N18 3AF

We can’t wait to see you there!

You can find the link to buy tickets below and in the event bio 🎟️⏳

uk.givergy.com/ButterflyAVMCharityBall/?controller=home ... See MoreSee Less

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Just got my tickets for our first ever one! Looking forward to it!

The Butterfly AVM Charity

5 months ago

The Butterfly AVM Charity
✨ 🦋 The Butterfly AVM Charity Ball will be back bigger and better than ever on Saturday 11th November 2023! ✨🦋 Tickets on Sale Friday 7th July! Set a Reminder! ✨ 5.30pm - 2.00am, Dinner - 6.30pm ✨ ✨ £70.00 ✨ ✨ The Meridian Grand, Advent Way, London, N18 3AF ✨ 🦋 Cocktail reception | Three course meal | Silent auction | Raffle | Music | Dancing | Entertainment 🦋

✨ 🦋 The Butterfly AVM Charity Ball will be back bigger and better than ever on Saturday 11th November 2023! ✨🦋 Tickets on Sale Friday 7th July! Set a Reminder!

✨ 5.30pm - 2.00am, Dinner - 6.30pm ✨

✨ £70.00 ✨

✨ The Meridian Grand, Advent Way, London, N18 3AF ✨

🦋 Cocktail reception | Three course meal | Silent auction | Raffle | Music | Dancing | Entertainment 🦋 ... See MoreSee Less

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Looking forward to it!

Stefan Galo

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✨🤩 Tonight’s the night! We’re getting set ✨🤩 Tonight’s the night! We’re getting set up for another SOLD OUT Butterfly AVM Ball! Doors open at 5.30pm for a drinks reception and canapés 🍸🍹 & we will be seated for dinner at 6.30pm. See you there! 🍾🥂 This night would also not be possible without our amazing event sponsors: @thebrentanosuite - @officialwatches - @lendhub - Fosby House - Sax Design - Hydra Capital - Paschalis Law - Ace Logistics - CMB Partners
🥳 We are delighted to announce that the Butterf 🥳 We are delighted to announce that the Butterfly AVM Ball has, once again, sold out! If you are joining us for this special event, we are looking forward to sharing a truly inspiring evening with you.🦋 This night would also not be possible without our amazing event sponsors: @thebrentanosuite - @officialwatches - @lendhub - Fosby House - Sax Design - Hydra Capital - Paschalis Law - Ace Logistics - CMB Partners
Just under two weeks until the big day! 🥳🦋 Just under two weeks until the big day! 🥳🦋 As we edge closer to the 11th November we’d like to announce this years’ 2 amazing golden ticket prizes for the Butterfly AVM Charity Ball! On the night you’ll be able to buy golden tickets, giving you the chance to win a £1000 CEX @cex voucher or 7 nights at the lovely Four Seasons hotel in Limassol, Cyprus. @fourseasonscyprus 🏆 We’re down to the last few remaining tickets so make sure to get yours now!🎟️⏳ Link in bio ✨ Thanks to our event sponsors: @thebrentanosuite - @officialwatches - @lendhub - Fosby House - Sax Design - Hydra Capital - Paschalis Law - Ace Logistics - CMB Partners.
✨ As it’s AVM Awareness month we wanted to hig ✨ As it’s AVM Awareness month we wanted to highlight the Butterfly AVM Charity and why it was initially created. Our very own Nikki Lilly was diagnosed with an AVM when she was just 6 years old. Since then, we’ve watched her grow up & inspire us all.. one award at a time🦋💛 Every year we host a Charity Ball to raise money for this great cause! We only have a few remaining tickets for this years ball on 11th November, so get yours now using the link in our bio! 🎟️⏳ #avm #butterflyavmcharity #avmawareness #rarediseaseawareness #nikkililly
The most inspirational night of the year is offici The most inspirational night of the year is officially under 3 weeks away! 🕺🏽 Join us at the Meridian Grand on Saturday, November 11th, for a memorable night full of fun and entertainment, all whilst raising money for the Butterfly AVM Charity! 🦋 Tickets are nearly sold out, so buy now to ensure you don’t miss out! 🎟️ LINK IN BIO ⬆️ ✨ Thanks to our event sponsors: @thebrentanosuite - @officialwatches - @lendhub - Fosby House - Sax Design - Hydra Capital - Paschalis Law - Ace Logistics - CMB Partners.
Tickets are nearly sold out for our biggest annual Tickets are nearly sold out for our biggest annual charity ball yet!!🦋🤍 We are so excited to welcome you all to experience the most inspirational night of the year!🙌🏾 When: 11th November Venue: Meridian Grand, Advent Way, N18 3AF Time: 5:30pm - 2:00am Link in bio for remaining tickets!🎫 ✨ Thanks to our event sponsors: @thebrentanosuite - @officialwatches - @lendhub - Fosby House - Sax Design - Hydra Capital - Paschalis Law - Ace Logistics - CMB Partners.
🫶🏼 October is AVM awareness month. ✨Our i 🫶🏼 October is AVM awareness month. ✨Our inspirational co-founder of The Butterfly AVM Charity Nikki discusses the importance of months like these when it comes to shining a light on the necessity of funding towards research and awareness for rare diseases such as AVM’s. 🎟️ Join us at our annual charity ball on 11th of November, and help us make a change. Ticket link in our bio, see you there! 🦋 #rarediseaseawareness #raredisease #avm #avmawareness #nikkililly
1 month to go until the best night of the year! 🙌 Tickets for this year's Butterfly AVM Charity Ball on November 11th are selling out fast!🏃‍♂️ There will be a: - Drinks reception 🥂 - 3 course meal 🍽️ - Cocktail bar 🍸 ..and fabulous golden ticket & raffle prizes, including a stay at the luxurious Four Seasons hotel in Limassol, Cyprus. 🏝️ 🎫 Don’t miss out on this opportunity to be a part of this truly special evening!🦋 🎟️ link in bio ⬆️
"🦋 Join us for the Butterfly AVM Charity Ball! "🦋 Join us for the Butterfly AVM Charity Ball! 🌟 Tickets are flying off the shelves for our annual ball on November 11th – don't miss your chance to be part of the most inspirational night of the year! 🎉 Hosted by the magical @iamspelmann with music from @enthimionmusic and Tony DJ! 🎟️ Grab your tickets now using the link in bio ⬆️
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