News

3 months ago

Congratulations to George & Cos for completing The Vitality 10k Challenge and raising over an amazing £1000 for our Charity. Thank you so much for all your never ending support. Its still not too late to donate xx
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Butterfly AVM 10K Cos and George

4 months ago

These two living legends Cos & George are again running to raise funds for our Charity. We thank you for your continued and never ending support. Please donate so we can make a change to AVM sufferers lives. Every penny makes a difference.

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Help Costas and George raise money to support The Butterfly AVM Charity Limited

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101 famous women in history to celebrate on International Women’s Day

5 months ago

I am honored to be named amongst a select group of amazing women in history. But each and everyone of us are special and we all have the power determination and courage to make a change xx Close your eyes make a wish, then open them and make your dreams a reality x
33. Nikki Lilly (2004-present)
“I did not choose to be born with a chronic illness, but I do choose to make the most of every single day of my life and make every second count.”
As famous women in history go, Nikki Lilly has the edge. Living with a rare medical condition called AVM, which affects her appearance, however its not stopped her forging her own path.
Her You Tube channel, where she explores her love o singing and makeup and which she uses to share her experiences of living with a visible difference.
The youngest ever recipient of the BAFTA Special Award, in 2019, she was also awarded the International Emmy Kids Awards for her episode of the CBBC series My Life, Nikki Lilly Meets.

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www.goodto.com

There are so many famous women in history - both from yesteryear and yesterday - some we recognise from every International Women's Day and others who

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Nikki Lilly on Glow Up Does Red Nose Day: 'I've always thought make-up was magical' - BBC Three

5 months ago

Nikki Lilly on Glow Up Does Red Nose Day: 'I've always thought make-up was magical' - BBC Three ... See MoreSee Less

www.bbc.co.uk

Nikki is taking part in BBC Three's Comic Relief special Glow Up Does Red Nose Day, alongside radio presenter Roman Kemp, BBC Radio 1Xtra's Snoochie Shy, winner of RuPaul's Drag Race UK series one The Vivienne and musician Lady Leshurr.

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5 months ago

Thank you so much Abi, you are a star xx Please help Abi in any way you can. No donation is too small. Lets help make that change

Abis Fitness Fest
"I am raising money for The Butterfly AVM Charity because Nikki Lilly is my hero and I want to help her x"

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Abis Fitness Fest

www.justgiving.com

Help Melanie Phillips raise money to support The Butterfly AVM Charity Limited

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