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News

14 November 2019

Nikki Lilly Youngest Ever Bafta Special Award Winner

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6 November 2019

The Butterfly AVM Charity Dinner and Dance 2019

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6 November 2019

Nikki Lilly Speaking on ITV London NEWS

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6 November 2019

Vascular Anomalies Special Interest Group brings together a range of specialists this December

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6 November 2019

BREAKTHROUGH IN AVM RESEARCH!

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16 September 2019

The boy was dying. Zebrafish helped save his life

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7 February 2019

The Butterfly AVM Olympians

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    The Butterfly AVM Charity

    2 weeks ago

    The Butterfly AVM Charity
    Congratulations to George & Cos for completing The Vitality 10k Challenge and raising over an amazing £1000 for our Charity. Thank you so much for all your never ending support. Its still not too late to donate xx https://www.justgiving.com/fundraising/avm10k?utm_source=Sharethis&utm_medium=fundraising&utm_content=avm10k&utm_campaign=pfp-email&utm_term=e4ab5b27ed3246b281240b8b0217446b.

    Congratulations to George & Cos for completing The Vitality 10k Challenge and raising over an amazing £1000 for our Charity. Thank you so much for all your never ending support. Its still not too late to donate xx
    www.justgiving.com/fundraising/avm10k?utm_source=Sharethis&utm_medium=fundraising&utm_content=avm....     ... See MoreSee Less

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    The Butterfly AVM Charity

    3 weeks ago

    The Butterfly AVM Charity

    These two living legends Cos & George are again running to raise funds for our Charity. We thank you for your continued and never ending support. Please donate so we can make a change to AVM sufferers lives. Every penny makes a difference.

    www.justgiving.com/fundraising/avm10k     ... See MoreSee Less

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    Butterfly AVM 10K Cos and George

    www.justgiving.com

    Help Costas and George raise money to support The Butterfly AVM Charity Limited
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    The Butterfly AVM Charity

    2 months ago

    The Butterfly AVM Charity

    I am honored to be named amongst a select group of amazing women in history. But each and everyone of us are special and we all have the power determination and courage to make a change xx Close your eyes make a wish, then open them and make your dreams a reality x
    33. Nikki Lilly (2004-present)
    “I did not choose to be born with a chronic illness, but I do choose to make the most of every single day of my life and make every second count.”
    As famous women in history go, Nikki Lilly has the edge. Living with a rare medical condition called AVM, which affects her appearance, however its not stopped her forging her own path.
    Her You Tube channel, where she explores her love o singing and makeup and which she uses to share her experiences of living with a visible difference.
    The youngest ever recipient of the BAFTA Special Award, in 2019, she was also awarded the International Emmy Kids Awards for her episode of the CBBC series My Life, Nikki Lilly Meets.

    www.goodto.com/entertainment/famous-women-history-654635     ... See MoreSee Less

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    101 famous women in history to celebrate on International Women’s Day

    www.goodto.com

    There are so many famous women in history - both from yesteryear and yesterday - some we recognise from every International Women's Day and others who
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    The Butterfly AVM Charity

    2 months ago

    The Butterfly AVM Charity

    Nikki Lilly on Glow Up Does Red Nose Day: 'I've always thought make-up was magical' - BBC Three ... See MoreSee Less

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    Nikki Lilly on Glow Up Does Red Nose Day: 'I've always thought make-up was magical' - BBC Three

    www.bbc.co.uk

    Nikki is taking part in BBC Three's Comic Relief special Glow Up Does Red Nose Day, alongside radio presenter Roman Kemp, BBC Radio 1Xtra's Snoochie Shy, winner of RuPaul's Drag Race UK series one The Vivienne and musician Lady Leshurr.
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    The Butterfly AVM Charity

    2 months ago

    The Butterfly AVM Charity

    Thank you so much Abi, you are a star xx Please help Abi in any way you can. No donation is too small. Lets help make that change

    Abis Fitness Fest
    "I am raising money for The Butterfly AVM Charity because Nikki Lilly is my hero and I want to help her x"

    www.justgiving.com/fundraising/melanie-phillips12     ... See MoreSee Less

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    Abis Fitness Fest

    www.justgiving.com

    Help Melanie Phillips raise money to support The Butterfly AVM Charity Limited
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    Thanks for your support The Butterfly AVM Charity 🥰

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    Tweets by @Butterfly_AVM

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    ❤️PLEASE HELP❤️ These families really nee ❤️PLEASE HELP❤️ These families really need us. ❤️One of us CAN save their lives. FACT!!!❤️ Share share and share
    It is with great sadness that we announce the pass It is with great sadness that we announce the passing of our beautiful friend @tina.josephides who passed away peacefully on Thursday 27th January 2022 at the age of 51. 🦋 We are honoured to call Tina a friend who from the moment the Charity was founded did everything possible to help us with Charity fundraising events. 🦋 May you rest in peace, we will never forget your smile, your love, your kindness and the sunshine you brought into all our lives. 🦋 The Butterfly AVM Charity family
    Thank you to Robson and Sinead who ran in memory o Thank you to Robson and Sinead who ran in memory of Vincent O’Brien. 🦋 Vincent sadly passed away in June 2021. 🦋 Sinead, his daughter, and her partner raised £2,530 whilst participating in a 10km race. 🦋 May his memory be Eternal
    She made it!!! 🦋 Huge congratulations to @elena She made it!!! 🦋 Huge congratulations to @elenageorgiou18 on this phenomenal accomplishment! 🦋 Thank you to all those who sponsored and those who intend to.
    Hi @elenageorgiou18, your view is amazing! 🦋 ww Hi @elenageorgiou18, your view is amazing! 🦋 www.justgiving.com/fundraising/Elenageorgiou18? 🦋
    We are pleased to announce the latest update from We are pleased to announce the latest update from our research programme. . Please clink link in bio to view details
    From all us at The Butterfly AVM Charity have a Me From all us at The Butterfly AVM Charity have a Merry Christmas & a Happy New Year🎄enjoy your day x #merrychristmas #merrychristmas2020 #butterflyavmcharity
    Let’s get to £20k!! Link in our bio takes you s Let’s get to £20k!! Link in our bio takes you straight to the donation page of our website 🦋 #butterflyavmcharity #charitynight #zoomevent #donate #donations #nikkililly
    WOW! Thank you all so much for your support 💙 W WOW! Thank you all so much for your support 💙 We hope you’re having as much fun as we are tonight! @iamspelmann what an amazing show, along with a challenging quiz by @nikkililly_ And now for some more @djtonyperry with the tunes 🎶🎶 #butterflyavmcharity #charity #charityevent #zoom #zoomnight #nikkililly
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