RESEARCH – AWARENESS – SUPPORT
Together we can make a change, build awareness, support and raise funds for much needed research into the understanding of facial, extremity and brain AVMs. Due to the rarity of AVMs in the population and lack of funding, the advancements required to enable doctors and surgeons to increase the success rate of treatments has been slow. Our Charity was created with a dream to redress this by providing directional funding to Research institutions in the hope that definitive treatments are discovered.
I would like to thank Dr Veronica Kinsler, Dr Maanasa Polubothu, Mr David Dunaway, Great Ormond Street, The Royal Free, The UCL Hospitals and The Francis Crick Institute for their constant support, medical expertise and knowledge, which is second to none and to all our Butterfly AVM Taskforce and volunteers who unselfishly give up their valuable time to help us on journey.
Thank you.
George Christou
Director of The Butterfly AVM Charity Limited

DONATE & FUNDRAISE VIA THE FOLLOWING PLATFORMS


Our Charity has greatly helped the lives of AVM sufferers and their families, by offering information and advice on who to turn to for help.

THE BUTTERFLY AVM BALL 2023: AN AMAZING SUCCESS!
Achievements & Press
Our best ball yet…What a night!
Nikki Lilly Wins TikTok Award for Fashion & Beauty
A Video Message from Nikki for AVM Awareness Month
Royal Free London & Research Update – October 2025
Breakthrough Research Offers Hope for New AVM Treatments
Nikki Lilly On Dating, Her Medical Condition & Trolls | Private Parts Podcast with Jamie Laing
Save the Date: The Butterfly AVM Ball will be back in 2025!
Lucy’s Fundraising Story

