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News

9 July 2025

Breakthrough Research Offers Hope for New AVM Treatments

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27 June 2025

Our Charity Ball 2025 Tickets Are on Sale Now!

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19 November 2024

Nikki Lilly On Dating, Her Medical Condition & Trolls | Private Parts Podcast with Jamie Laing

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8 November 2024

Save the Date: The Butterfly AVM Ball will be back in 2025!

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7 November 2024

Lucy’s Fundraising Story

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5 October 2024

Over 10k Raised in Memory of Jamie Tucknott

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19 May 2024

Our Visit to UCL/ Royal Free Research Team

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5 December 2023

The Butterfly Ball 2023 – An Amazing Success! Nikki Lilly the inspiration behind the charity…

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